I have been current Chair of the Ross cancer Support Group since 2016. I became a Patient Advocate(Representative) following my late wife’s diagnosis of a progressive high grade brain tumour in 2004, being operated on, followed by radio therapy and chemotherapy trial. She died in February 2006, a month after her father’s death and one month before my daughter’s wedding, so quite a traumatic time as I was her principal carer.
My involvement in her treatment and care, at her Consultant’s suggestion, I became a patient representative within the 3 Counties Cancer Network (South Worcestershire, Herefordshire and Gloucestershire),progressing to Chair of the Partnership Group till the Cancer Networks were dissolved in 2013.
I then joined the West Midlands Cancer Alliance , initially joining the Brain and CNS, Expert Advisory Group (EAG) and also for NHS England.
I was diagnosed with Prostate Cancer in 2015, for which I received laparoscopic nerve sparing radicle prostatectomy, making a good recovery. This lead me to joining the Urology EAG. I have also joined Radiotherapy, and further EAG’s as Patient Advocate.
I was Chair of Pendeen GP Surgery PPG for several years, now changing to Deputy Chair, Chair of the Ross Cancer Support Group and belong to Herefordshire Healthwatch and Wye Valley Trust.
From a Patient Perspective, I am passionate about the development of a seamless provision of treatment and support, both physical and psychological, to the Patient at all stages of their journey involving Primary, Secondary and support services.